Useful Organisations

- Stennis Foundation: Research Metachromatic and other Leukodystrophies
http://www.stennisfoundation.org/web/

- Bethany's Hope: Research Metachromatic and other Leukodystrophies
http://www.bethanyshope.org/

- Brianne's LEAP (Leukodystrophy Education and Awareness Project) of Hope
http://www.briannesleapofhope.org/

- Hunter's Hope: Reseach Krabbes and other types, and push for newborn screening
http://www.huntershope.org/site/PageServer

- MLD Foundation: All things to do with metachromatic leukodystrophy
http://www.mldfoundation.org/

- Adrenoleukodystrophy (ALD) Foundation: All things to do with adrenoleukdystrophy
http://www.aldfoundation.org/

- The myelin project: Research cure and treatment of all de-myelinating disease
http://www.myelin.org/

- CLIMB (Children Living with Inherited MetaBolic disease)
www.climb.org.uk

- Childrens' Hospice UK
www.childhospice.org

- United Leukodystrophy Foundation
www.ulf.org

- Evanosky Foundation - fights metachromatic leukodystrophy and other leukodystrophies:
http://www.evanoskyfoundation.org/