Background information
Thank you to Kim Behnken, mother of Reese (metachromatic leukodystrophy), who has given me details about Green Goo (passed on to her by Charlotte Logan, another MLD parent). Kim and many other families who care for a loved one with leukodystrophy use this recipe to keep their loved ones who have leukodystrophy a good weight and in good health. In many respects it is very similar to the previous blog entry 'power juice', but with some ingredients added and some removed.
Reese uses vivonex (just like Shira!) as an overnight feed and starts green goo in the morning three hours after her overnight feed has finished. Vivonex is a complete oral/tube feeding formula that consists of free amino acids rather than whole protein, and so is easier to digest. Patients under stress may well tolerate free amino acids better than whole protein. Again, a dietician is the person to consult before starting or changing any feeding regimes, and they can also help determine how much of each of the green goo ingredients will be needed for the individual with leukodystrophy. Here is a link to vivonex:
http://www.nestle-nutrition.com/products/Family.aspx?FamilyId=345ae4e7-5dd3-4a5e-9abb-3eca340c3c3a
Equipment Needed to make green goo
Freezable storage containers
Juicer
Blender
Ingredients for green goo
Spinach
Carrots
2 Salmon (pouches)
Organic Smoothe Peanutbutter*
Avacados
Bananas*
Kiwi
Blueberries
Squash
Cucumbers
Broccoli
(Prune puree)
How to Make
Juice all the ingredients with the exception of the bananas, peanut butter, avocadoes and salmon
Add to the blender all juiced ingredients along with chopped avocado, chopped banana, peanut butter and salmon
Blend
Strain
Freeze individual servings in separate storage containers.
Use as required/directed by a dietician
* Elvis Presley loved the combination of peanut butter and bananas, apparently!
Showing posts with label diet. Show all posts
Showing posts with label diet. Show all posts
Wednesday, 27 January 2010
Friday, 15 January 2010
POWER JUICE
Rationale
‘Power Juice’ is taken from a recipe by Brad and Maxine Fisher, whose daughter, Shira, has SMA type 1. They follow an amino acid diet using vivonex. You can discuss with a dietician and/or doctor/neurologist whether the person with leukodystrophy would benefit or not from such a diet.
This recipe is the special ‘juice’ they add to Shira’s vivonex. Again a doctor or dietician or nutritionist can recommend amounts of different ingredients. The juice provides lots of fibre, a wide range vitamins and minerals as well as beneficial fatty acids, slow energy release and a good balance of sodium and potassium. The last of these can help prevent heart disease.
Because it is (mostly) raw, rather than unpasteurised (fruit juice is pasteurised too, like milk), the nutrients aren’t degraded. The resulting juice is therefore full of natural beneficial chemicals such as active enzymes (which are destroyed by heat), which can apparently really help digestion, possibly making the person with leukodystrophy less ‘sicky’ or reducing reflux.
Aside from this a good complement of natural nutrients, as well as probiotics, may help to dramatically reduce infections.
Foods used by the Fishers (check with doctor/dietician if possible):
Apples
Pears
Celery
Spinach
Avocado
Banana
Cooked yam (not sweet potato – sweet potatoes are orange inside – yams are white)
Organic, shop bought undiluted prune juice
Equipment
Juicer – preferably electric
Blender
Medium-fine strainer/sieve (some pulp getting through will be more nutricious)
Optional – grater (may help to blend the mixture better to grate it first)
Glass jars with lids
To Make:
Cut up all fruit to be juiced into small places
Place fruit and spinach in juicer and juice. If need be blend after juicing
Pour through strainer to take out large lumps that won’t go through a feeding tube.
Some sediment will still remain but this is fibre and is good.
Get the yam, wash and scrub it clean. Peel it and cut it into slices or chunks,
Boil the yam chunks until they are soft. Allow it to cool a little so it is not piping hot.
Open the avocado, scoop out the inside, and cut into chunks.
Add the yam chunks, along with the avocado to the juice, add prune juice, some water and the probiotic
Blend and strain again
Sterilise the glass jars either by boiling in water or microwaving (with the lids off!) half full of water for one minute.
Pour the mixture in to the jars, put the caps on tightly and store in the fridge for no more than four days. This can be added to tube feed or given as a supplemental drink.
Other Suggestions for foods to add (check with doctor/dietician if possible)
Royal jelly
Kale
Quinoa
Kiwi
Spirulina
Cranberries (help reduce the likelihood of urinary tract infections)
Actimel, yakkult or another probiotic
‘Power Juice’ is taken from a recipe by Brad and Maxine Fisher, whose daughter, Shira, has SMA type 1. They follow an amino acid diet using vivonex. You can discuss with a dietician and/or doctor/neurologist whether the person with leukodystrophy would benefit or not from such a diet.
This recipe is the special ‘juice’ they add to Shira’s vivonex. Again a doctor or dietician or nutritionist can recommend amounts of different ingredients. The juice provides lots of fibre, a wide range vitamins and minerals as well as beneficial fatty acids, slow energy release and a good balance of sodium and potassium. The last of these can help prevent heart disease.
Because it is (mostly) raw, rather than unpasteurised (fruit juice is pasteurised too, like milk), the nutrients aren’t degraded. The resulting juice is therefore full of natural beneficial chemicals such as active enzymes (which are destroyed by heat), which can apparently really help digestion, possibly making the person with leukodystrophy less ‘sicky’ or reducing reflux.
Aside from this a good complement of natural nutrients, as well as probiotics, may help to dramatically reduce infections.
Foods used by the Fishers (check with doctor/dietician if possible):
Apples
Pears
Celery
Spinach
Avocado
Banana
Cooked yam (not sweet potato – sweet potatoes are orange inside – yams are white)
Organic, shop bought undiluted prune juice
Equipment
Juicer – preferably electric
Blender
Medium-fine strainer/sieve (some pulp getting through will be more nutricious)
Optional – grater (may help to blend the mixture better to grate it first)
Glass jars with lids
To Make:
Cut up all fruit to be juiced into small places
Place fruit and spinach in juicer and juice. If need be blend after juicing
Pour through strainer to take out large lumps that won’t go through a feeding tube.
Some sediment will still remain but this is fibre and is good.
Get the yam, wash and scrub it clean. Peel it and cut it into slices or chunks,
Boil the yam chunks until they are soft. Allow it to cool a little so it is not piping hot.
Open the avocado, scoop out the inside, and cut into chunks.
Add the yam chunks, along with the avocado to the juice, add prune juice, some water and the probiotic
Blend and strain again
Sterilise the glass jars either by boiling in water or microwaving (with the lids off!) half full of water for one minute.
Pour the mixture in to the jars, put the caps on tightly and store in the fridge for no more than four days. This can be added to tube feed or given as a supplemental drink.
Other Suggestions for foods to add (check with doctor/dietician if possible)
Royal jelly
Kale
Quinoa
Kiwi
Spirulina
Cranberries (help reduce the likelihood of urinary tract infections)
Actimel, yakkult or another probiotic
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